Tuesday, January 16, 2007

Silverlock day5

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After the first operation the radiation started half february. Here you can see here being strapped into the molded mask with the radiation scheme drawn on it.
She gradually started to loose her hair and desired something to cover it when going in public. I favoured caps or hats, but she first wanted a wig. We had a shop very near by. Luckily she did see how much more you look like a tumorvictim with a wig on. And I went out and bought a dozen of caps and hats for her to choose from. See below. See also how she smiles to me. Sigh.
At the end of the radiationperiod her arm started to lame and her moving started to get troublesome. Much sooner than the darkest forecast, she had a second mandarin in her head.
We had to decide whether to operate, because a next operation would take more of the communicationskills of Annemarie away as the first operation already did. A thought that was a nightmare for her. Luckily the surgeon told us there was a new chemo kind of medicin that had just left the testphase that she could get in order to try to stop regrowing or new tumors. OK.
But after the operation (not right away of course), contacting the physician that had to give her the medication, it soon appeared that the medicin was such a high risk for her blooddisease, that it was no way possible for her. Two very harsh diseases, and both with reasonable treatment chances, but both the treatments not possible because of the other disease. A devastating deadlock. And all the time or her bloodpatelet level lowered (sometimes it rose with the help of our homoeopath) or she had several epeleptic fits. These both reoccured so often, when not occuring the fear of them happening was grasping you at your balls.
Photo below we were at the camp of the dramacourse my youngest participated in. Here she is looking at the play, obviously enjoying it, with constant loud noise and a lot of flickering lights. My other daughter and I hardly enjoyed it because we were sitting cramped of despair, fearing for her to have a fit. And fearing it for our youngest as well. Luckily when Annemarie thought it too much she bended her face down for a while or put her fingers in her ears. It went allright than, it lasted till two days later and she really had a big one.

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